The saddest holiday I can remember....

Hi everyone...I'm so sorry to be sad during what is usually my favorite time of the year....and really, for the most part, things are looking up more than I had recently imagined that they could.

The thing is....I'm afraid I'll be losing my mom soon.  She now has a 3rd UTI and the bacteria culture shows that it is Vancomycin Resistant Enterococcus, or VRE, for short.  For you and I, even though it's a bacteria that's resistant to most antibiotics (but not all), it really doesn't affect us, because our immune system(s) can take care of it.  But in people with weak immune systems, it is very hard to get rid of.  The nurse practitioner at the nursing home says that she thinks that my mom may get better temporarily, but we will probably never be "rid" of this infection.  She is being treated with Macrobid, which is one of the very few antibiotics that have proven effective against this bug.

Sadly, despite the antibiotics, which were started four days ago, I am not seeing that she is "getting better" much.  Yesterday she seemed to be alert for about an hour.  Today I went to supper with her, and got her to eat a little bit, but then suddenly, she couldn't stay awake any more.  I left feeling so very down and heartbroken.  I haven't wanted to write this post, because I've been afraid on some level, that I might "jinx" things--even though I know I really couldn't, somehow, I'm still strangely superstitious.

Here is what I am seeing/thinking, and I am very much hoping that I am wrong, and willing to be wrong and admit it proudly....but.....

My mom is still not eating much.  She eats more when I am able to be at the meal with her and coax her to take a few bites.  Based on my "career" with trying to become a size 5, I can guesstimate that at the meals where I am present, she is only eating about 100 calories or so.  And I'm told that she "eats better" for me than for the aides.  Many times when I cannot be with her at mealtimes, she refuses to eat at all.  I'm a little confused about this because of the dementia.  I know that when someone "stops" eating, it's a clear sign that the end will be coming soon.  But with Alzheimer's, I'm not completely sure if she has stopped eating because of that reason, or if she has stopped because she doesn't feel the hunger, doesn't remember why it's important to eat....?  I don't know if it even matters....Even when I'm feeding her, she gets to a point where she absolutely won't eat another bite--I guess when the time comes where she is "done" eating before she even starts, then I'll have a clearer idea of what's really happening with that.

I suspect that I may not even have time to worry about that.  These nonstop UTIs have really been wearing her down.  The nurse practitioner says that my mom's immune system is fading and she is no longer able to fend off any of these infections.  So at this point, the eating/non-eating issue may be moot, because of the infection(s).  Especially this most recent one.  I thought my mom would at least "bounce back" a little when they started the Macrobid, but that hasn't been the case so far.

Yesterday, Christmas Day, was very sad for me, too.  I was really torn as to how to do things and I'm afraid I didn't do a very good job.  DD was allowed to come home for a visit.  And since she hadn't seen many of our extended family since she went to the treatment center, I thought it was important that she be able to attend our traditional "family" Christmas and know that she was still included in the family.  But what that meant, unfortunately, was that my mom would be absent from the get-together, because at the moment, she is not able to provide much assistance when it comes to getting her in and out of the car, or in and out of the wheelchair....and my brother's home has lots of stairs, even just to go inside.  So I made the decision that DD would attend the Christmas with DH and I, then we would rush home and I would spend supper with my mom.  And we will have a "special" Christmas celebration on Jan. 1, where my brother has promised to bring his two little boys, so "grandma" can see them opening presents.  I hope she is well enough at that point.  I'm a little worried that, if things keep going the way they have these last couple of days, she might be bedbound by then.  I am so much hoping and praying that is not the case.  But I have never gone through this with anyone before, so I don't really know what to expect other than from here on out, it's probably not going to be easy or fun.

I feel like I've been focusing so much energy on my mom lately, that I (once again) have been falling down in the other areas of my life--you all know I tend to do this, but I don't think my family realizes it yet.....when things are really really bad, I tend to not want to talk to anyone except maybe DH.  So I haven't been communicating with friends who've reached out to me, both from this blog and from my old job that I got laid off  from.....I haven't been living up to my own expectations of myself.   And that doesn't help me feel any better.



I'm sorry I'm so sad tonite.  But I knew I could tell you about it.