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Wednesday, October 28, 2009

The hardest thing

Last night, the assisted living staff found that my mom had wandered out of her apartment and into the lunchroom (dining room) of the facility, because she could not find the bathroom in her apartment. They found her on a chair in the lunchroom with her pants around her ankles. Luckily there was no accident....I guess...

I got so upset when I found out about this. To me this is a pretty terrible thing. Of course DH will stay with her while I work tonite...but...even so, it's a terrible thing. It quite possibly signifies an entirely different stage in the dementia game.

And I had to take DD to her therapist today, and (lucky us) DD was just as awful as she was the night she cut her wrist. She had (once again) decided that she was having a Halloween party on Friday (yep, day after tomorrow)....and when I said "no", and the therapist said that there was no way I could do that when I'm under so much stress, DD started swearing and screaming at the therapist. I'm glad it happened there, because now she (the therapist) will know exactly what's going on at home...) but the clincher of that was when DD yelled out "IT'S ALL GRANDMA'S FAULT!" I felt so sad, hurt, and angry....I just started crying right there in the therapist's office....and she was concerned...so concerned that she called me after we left to talk a little more....

I honestly feel so absolutely overwhelmed....I so much want to do the "right" thing for these people I take care of....

And you know they say "God never gives you more than you can handle" and "you've got an awful lot on your plate..."? I think I grabbed someone else's plate. And crumbs are falling off the plate all over the place.

The hardest thing is the not knowing. About my mom, that is....I know there is probably a nursing home in the future for her. Is it now? I don't know. I talked to the nurses who are in charge at the assisted living center, and while I was panicky, they were pretty calm (I imagine they see this fairly regularly, being in the line of work they're in....) They told me that right now all we need to do is keep an eye on my mom.....she has that appointment on Nov. 6, so if we can get to that, maybe the doctor will have some ideas.....or maybe she will stabilize(?) The nurses said "we just need to see if this is going to be a regular thing, or if it's just a fluke." That made me feel a little better. They're not going to just kick her out for one episode of troubling behavior.

I'm not even sure what I should be hoping for right now....I guess I've just got to trust the other people who know her and just keep an eye open in case....I don't want her to go to a nursing home. But if this confusion is going to be the "new normal", it won't matter where she's at any more. (But she got better over the weekend!!!!) (and now she's not better any more). Although today she seemed relatively normal (where yesterday she didn't know where her couch was....) I don't have any idea what to do.

I did, however, talk to my brother and we did come up with a sort-of plan....we (I/DH) are going to try to make it to Nov. 6. At that point, if the Dr. doesn't have any ideas and the confusion is still not ok, we will bring her to that new geriatric psych hospital about an hour away to see if they can improve things at all. (If she has to go somewhere anyhow, might as well start with that)....and then see what they recommend.

And DD's therapist also suggested that I contact Public Health and see if they can help me out a little. I don't really know what they do (Public Health), so I'm a little hesitant to get them involved....it might be another good idea, though....

1 comments:

perphila said...

You can always call Public Health and ask what their services are before you make any commitments. I hope DD has another session scheduled soon. It was a nice thing for the therapist to call and talk with you. The boys therapists do that for me from time to time too if I am having an off day.

I guess it's not unexpected at this point for your mom to have some real bad days. It just hurts to see them. It's good you have some kind of plan in place to make one less thing to think about. I hope the waiting for the appointment won't be too rough for you.